There is a rare genetic skin disease that causes abnormal thickening and hardening of the outer layer of the skin, giving it a rough, scaly appearance. This is epidermolytic ichthyosis, a disorder that affects the production of a protein called keratin.
Although the symptoms may vary depending on each person, Generally, care and treatments are required to keep the skin hydrated and minimize the discomfort that is usually generated. This disease usually occurs in approximately 1 in 200,000 – 300,000 newborns.
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Also, people who have this disease can develop generalized hyperkeratosis, a thickening of the skin in the flexion folds. This can also be accompanied by erythroderma, generalized redness of the skin. In addition, they are often prone to secondary infections.
“Growing up with ichthyosis felt like a constant battle with my own body. Being held as a baby made me cry in pain, I lost 70% of my education and was constantly out of the loop with my friends due to hospitalizations. Approximately five hours of my day are dedicated to caring for my skin,” the young woman commented on the changingfacesuk Instagram profile.
She also revealed that some people often approach her and ask her if she was burned or if she was careless. They also recommend remedies for her condition, which so far is incurable.
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In an interview with the BBC, Morgan revealed that she was diagnosed from birth, when midwives noticed that her skin came off easily when toweling.
“When I was born, I seemed to have gloves on my hands and socks on my feet, which was a telltale sign of where it would affect me,” he claimed. “I was very lucky to be diagnosed at birth as I was able to get the medical treatment I needed from the very beginning,” he added.
On the other hand, he has ensured that in the field of medicine the mental well-being of people with visible diseases should also be considered. “I would love to see people offered or referred to mental health support along with other medical interventions,” she concluded.
