Yeni Núñez, mother of Ashlin Naara Perdomo Núñez, a girl from Matanzas with a rare neurological disease whose case was made known in 2020, asked for help this Friday to get Ketotifen (hydrogen fumarate), which he has not had for a month, which has worsened his health.
“My heart is crushed because my favorite warrior, the strongest, bravest and most smiling woman I know, is sick. I have been without ketotifen for a month and here is the result”wrote Yeni Núñez, who shared an image in which her daughter is seen with an oxygen mask.
“Lord, put your healing hand on Ashlin and I declare that that cold and that lack of air leave the body of my princess“added the grieving mother, who has been battling her daughter’s condition for three years, which even led them to try a treatment in Miami.
Ketotifen, the medicine little Ashlin needs, belongs to a class of medicines called antihistamines, meaning it blocks histamine, a substance in the body that causes allergic symptoms.
Ashlin, who lives with her parents and her sister in the Colón municipality, in the Matanzas province, began at the age of four with symptoms of Krabbe disease, a neurodegenerative disease whose only treatment is stem cell transplantationwhich is not performed in Cuba.
In January 2020, mother and daughter traveled to the United States on a humanitarian visa to treat her neurological condition. They stayed there for 10 months, and she was diagnosed with an incurable disease with a very short life expectancy.
However, Núñez does not lose hope of offering her daughter a better quality of life and a treatment that saves her, something she has kept trying.
In April of this year, Yeni Núñez demanded a house that he assures that the Cuban government promised him as a result of their daughter’s illness, since they live in a batey very far from the town and the hospital. At least until that month, she still hadn’t been given the house.
