He also revealed that they traveled to India, because the treatments that have shown progress in people with cerebral palsy are from there. Going to that country was complex for the family, since Daniel needs special care.
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“The child cannot cry. Everything comes out through the cannula and does not use vocal cords. If we fall asleep, he runs the risk of choking on his own blood, as it happened to us once, ”he said.
“We have the document that says the brand of the concentrator, the type of batteries it uses, the duration, we feel that they discriminated against us,” Edgar Nieto told the national news.
With the passing of the days, the concern of this family has grown bigger, since the resources that were donated for Daniel are running out.
“The biggest concern is that supplies are running out and they are not available in India, These supplies are to feed him, to give him the medicines and essentials for him and the issue of the bowtie for the tracheotomy,” said Mileidy Hurtado, Daniel’s grandmother.
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@sensory_health Cerebral palsy is a condition that is generally given by a complication at birth, where the baby’s brain has a lack of oxygen, causing irreparable cortical damage, BUT ➡️ TREATABLE! This condition is not a disease, therefore, it has no cure and does NOT evolve, it has symptoms that will manifest with motor or sensory compromise, according to its classification and may change throughout the person’s life… ➡️ The motor capacity will depend the degree of affectation of the child or child or the functions that are affected. Stimulation and rehabilitation through physiotherapy is important. In any case, boys and girls who learn to walk frequently will do so late compared to the rest of the children. ? everyone at their own pace ? ➡️ . Boys and girls who are not able to control their movements well, or who lack verbal communication, are often treated by other people as if they have intellectual disabilities, but this is not always the case. Some people with cerebral palsy may have learning difficulties, but others may even have higher than normal IQs. ? it should not be assumed ? ➡️ It is essential for a good prognosis to carry out regular follow-up and control with specialists, who can offer them the most appropriate treatments and therapies for each case, always advised by experts, so that the boy or girl can reach the goals higher levels of development and autonomy. ? each case is unique; however, it can always be improved? Do not believe everything they tell you about disability, because it is a condition that should not generate regret, on the contrary, it should generate admiration ? #s#sensorialp#paralisiscerebrals#healthd#disabilityr#rehabilitationn#neurorehabilitations#sisepuede ♬ original sound – Sensory Health and wellness
For now, the family hopes that the Colombians and the government can help them return to their home in Cali, Colombia.
