Girl on the southern border of Mexico seeks to migrate to the United States to treat her rare disease

Alma Victoria Lamón, a 9-year-old Venezuelan girl stranded on the southern border of Mexico with 10 of his relatives, seeks to migrate to the United States to treat his neurodegenerative disease called NEDAMSS or IRF2BPL.

Marbis Zamora, mother of the minortold EFE that They are against time and the only alternative to save her is to travel to that country, so they risk crossing the Darien Jungle, Central America and now Mexicowhere are they standing because they do not have legal documents for their family.

For the mother of Alma Victoria, It has been very difficult to migrate, as they have treated the seizures during their journey, sometimes by bus and other times on foot.

“What we ask of the (Mexico) government is that they let us reach the border so we can deliver ourselves to the United States, we ask for a humanitarian visa to be able to transit through Mexico so that the girl can be treated.”the woman said.

NEDAMSS is a rare condition that arises from a variant in the IRF2BPL gene, which causes neurodevelopmental regression, seizures, autism, and developmental delay

The girl’s mother worked as an accountant and lawyer in Venezuela, but has left everything to cross into the United States.

The situation keeps her desperate, so she asked the Mexican authorities to allow her to move forward.

In addition, the family has launched during their pilgrimage the “Alma, my life against the clock” campaign, which seeks to raise resources to obtain treatment, with an estimated cost of $150,000 dollars in September.

At the moment, the family is in a makeshift camp in the town of Viva Méxicowhere she sleeps crowded with hundreds of other migrants.

The Venezuelans they fear that the Mexican immigration authorities will return them to the Guatemalan borderwhere they would have to face the road again.

Alma’s grandmother, Marvin Valenzuela, narrated that she has beaten cancer in her country and comes with four children, five grandchildren and her daughter-in-law.

I ask the President of Mexico, Andrés Manuel López Obrador, to help us to reach the Mexican border to cross into the United Statesbecause we have faith, certainty and conviction,” he said.

The situation reflects the panorama at the borders of Mexico, after the expiration on May 11 of Title 42 of the United Statesa measure that immediately expelled migrants on the grounds of the pandemic, now replaced with Title 8 and greater restrictions on legal asylum.

After the end of this immigration policy, irregular encounters of migrants at the US border fell 50% between May and June.

However, there was a 36% increase between June and July in the irregular migration of families traveling together, according to the Ministry of Foreign Affairs (SRE).

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